Research into the causes and treatment of Premature Ovarian Insufficiency (POI) is ongoing.
From time to time, we receive calls from specialists in the field who are looking for patients to provide their details or to get involved in a research project, with the aim of bettering the medical understanding of POI.
If you would be interested in participating in research, the latest research opportunities will be posted on this page.
Psychological Research: POI and Sexual Functioning – Cardiff University
Cardiff University students are currently undergoing a research project, alongside Professor Jacky Boivin, on premature ovarian insufficiency and sexual functioning.
Their research has suggested that women with POI may experience lower levels of sexual function and that support for issues of this nature is lacking. With the study, they hope to raise better understand how POI contributes to these challenges and the factors that worsen the relationship between POI and sexual function and further develop educational resources to address this.
The survey participants will be required to complete is online and only takes approximately 15 minutes. They will be provided with an information sheet and consent form before starting the survey and a debrief form upon completion.
Click here to participate in the survey – https://cardiffunipsych.eu.qualtrics.com/jfe/form/SV_9tSgdIM3sK2m7tA
POISE Study
What is the POISE study? We want to find out which treatment is best for relief of symptoms and reducing the long-term health risks of POI.
If you are able to take part in the study, you will receive either HRT or COC (we will call this your study treatment). Neither you nor your doctor will be able to choose which treatment you receive.
We would like you to continue to take part in the study for at least 5 years. However, you will be free to withdraw at any time if you wish. If you are planning to become pregnant within the next 12 months you will not be able to take part.
If you are aged between 18-40 and are interested in being involved in the study please get in touch with us at: poise@nottingham.ac.uk to get more information
POI Registry
A group of doctors led by Nick Panay, Consultant Gynaecologist from Imperial College London, Queen Charlotte’s & Chelsea and Chelsea and Westminster Hospitals, are gathering information on women with Premature Ovarian insufficiency (POI) in the POI Registry.
They are aiming to bring together health experts, industry and government to produce an international database to support the research and understanding of POI. From this database, they can work towards a better understanding of the history and treatment of the condition in order to improve overall patient care.
Details can only be registered by clinicians so if you wish to add your own details to the registry, remember to ask at your next appointment.
NB. You cannot register yourselves, but with your consent you healthcare professional can do so at https://poiregistry.net – thank you!
